In the first two posts-I not so subtly pointed out what I see as many of the biggest issues in the CPP community.
I could write a freakin novel about the problems.
I’m not going to though.
We need solutions.
We need to ALL work together.
We-as in ALL of us-need to get our collective sh*t together.
WE need to come up with a coherent,fact based,intelligently worded message.
If we don’t,no politician,no .gov agency head/mgt is going to pay any attention whatsoever to us.
I get that it’s hard to do on Twitter-due to 240 character limit,Farcebook ain’t much better.
There are a metric f*ckton of advocacy groups on Twitter/Farcebook.
None of us/them have a coherent,concisely worded,fact based message.
Everyone is all over the place-just throwing random sh*t against the wall to see if it sticks.
We appear unhinged to those who don’t understand what’s being done to us.
There are some very intelligent-even brilliant- people advocating for CPP’s.
The best of them/us realize that addiction treatment is tied into pain tx.
Not our fault-we know they’re two separate issues.
However… we need to team up and work together-which includes kratom advocates,and medical marijuana advocates-even though SOME from both groups claim their preferred tx curbs “opioid abuse”.
Arm yourselves with facts,links to CREDIBLE sources/studies.
Anyone who has the time to put together a list of studies/sources that support treating chronic pain with long term opioids-send it to me-GamegetterII@yahoo.com, or DM @StarvinLarry
Anyone who advocates for CPP’s,Addiction tx,kratom,or MMJ who wants to write posts for this blog-contact me,and I’ll make you a contributor,and you can post what you feel is relevant.
Can we please all work together on getting our message out in a way that those who do not understand chronic pain/chronic illness/addiction can understand?
Sad to say-but think of it as explaining these things to a toddler.
WE have to do this,or… we are gonna lose.
Think of it like this-there are more of us who suffer from chronic pain/chronic illness/intractable pain than there are .gov and medical community hacks like Kolodny/PROP(aganda)
WE have more time to put into this. They work 8 hour days-over half of us can’t sleep…
Check twitter at 3-4am if you don’t believe me.
We know our bodies,our pain,the years-or decades of failed tx prior to LTOT.
Many of us were stable on our meds,no addiction,no abuse for decades-now it’s “OMG-Heroin pills” “Go to hospital for broken arm-come out an addict”
“Tough it out and take Bufferin”
WE know these claims are pure,unadulterated male bovine excrement-we’ve all refuted them with facts.
Everytime some .gov agency hack,so-called “Dr” (yeah Mr. what are you gonna do next channel Carrie Nation and start chopping up Dr’s desks with a hatchet Kolodny-that meant you), politician,or community leader starts spewing the aforementioned excrement-blast them with facts-and links to credible sources/studies.
Political advocacy matters-and is effective-but…
We,as in ALL of us,have to leave the left/right,Hillary is corrupt,Trump is Hitler nonsense out of it.
I leave it out of pain threads-I have followers-and I follow them who are 100% opposite on politics-and gun rights-and on and on.
WE all have to leave the political horsepucky,the outrage,the personal beliefs,the religious beliefs,the you own guns-you want dead kids nonsense out of this.
Political advocacy works-but…
It takes big numbers-we have to have a lot of people-
The D.C. swamp dwellers won’t pay any attention unless the group being represented is in high hundreds of thousands – minimum.
We win this war by winning the small,winnable battles first.
We are not going to get all this opioid hysteria nonsense reversed in one shot-ain’t gonna happen.
Start at local and state level.
That’s how you get sh*t changed at fed level.
Doesn’t mean don’t try at fed level though-the more local and state support we get = more pressure on feds.
We can do this-we can win,it is in fact a war-wars are won by picking your battles,picking the time and place of your battles…and by using insurgent style tactics.
We have to hit them back harder-with facts,with numbers,more often,from more people.
Get inside their OODA loop – Google it 🙂
That is all for now.
Hope ya’ll are having a low pain day.